Today’s treatment was easier than yesterday’s. Until it wasn’t.
The treatment itself was fine. Barb and Erica took good care of me, pointed
the photon torpedo Star Trek beam at the right place, and zapped me for about
40 seconds or so. No muss, no fuss.
Then Barb, who is the head radiation therapist, asked if I
wanted her to go over everything that happened yesterday in some more
detail. She said she could see the
concern in my face yesterday, and wanted to reassure me. (She also read my blog.) She offered me a chair in her office and
explained everything they were looking at, the various radiation fields and
their percentages, the angles in the different photos, and the fact that it
looks like my nipple is going to spared much of the boost radiation. My lung, however, is going to get some, and
apparently has been getting some this whole time. Win some, loose some, I suppose.
She was so sweet, so patient, and offered to answer any
questions, at any time. I felt very respected,
and I was reminded that Barb pretty much rules.
She rules in an entirely different way than the way in which Carle
rules, but she rules just as much. Carle
rules like the friend who throws you the flamboyant and decadent surprise party
for your 30th birthday, filled with cake and decorations and loud
music and maybe even some scantily-clad dancers. Barb rules more like the calm and patient
friend who you can call at 3am because you find out your ex got remarried, the
one who lets you cry and tells you it’ll all be okay and you believe her. Both friends are vital, and neither are as
good without the other.
Then I met with Dawn, the oncology social worker. Dawn really knows her shit about the process
of going through treatment and transitioning into what she called “survivorship.” I hadn’t thought of it that way before… of
survivorship being a thing. It made me
think about when I was first told I had cancer, and a few days later, I saw a
pink ribbon. And I realized, unlike the
bazillion other times I had seen pink ribbons, that those ribbons actually
represented me now. Me. I had something so
fucked up, there’s a goddamn ribbon for
it. I had the same sensation today, that
as of next week, I will be a breast cancer survivor. Or maybe it’s Breast Cancer Survivor. Those capital letters seem to mean
something. At least right now.
But what we talked about the most was how I’m feeling, emotionally,
as I finish up my treatment. I only have
3 sessions left, and it feels exciting and scary to know I’m almost done. And those feelings are predictable and a
little bit boring, to be honest. I mean, duh, you know?
What feels overwhelming to me right now isn’t the fear or the excitement. It’s anger.
It’s more than anger, really, but I don’t know the right word. Fury comes to mind.
And it’s not the kind of anger that’s part of the stages of
grief or something. I mean, I’m over being pissed that this happened to me, and
I’m over being pissed at the disease itself.
My gene pool predisposed me to this crap, and despite my best efforts to
hold it off, a few bench presses and kale salads are just no match for
genetics. So it’s not that.
What I’m so fucking furious about is the lack of support I
have received from my “friends,” and my “community.” I have written before about the handful of
absolutely amazing people who have stood by my side and offered any support
they had to give and listened to me cry and complain and brought me lunch when
I was too tired to cook (or eat, for that matter) and even offered financial
support while I try to maintain my business throughout this mess. Those people, and God knows I’m so incredibly
grateful for them, have been literal lifesavers.
But the other people, the ones who know about it and who
haven’t shown up in any way, who haven’t called or written or even sent a text
message? I feel so… well, picture a
mushroom cloud. That’s pretty much how I
feel.
Dawn and I discussed the fact that there are lots of reasons
why people don’t show up when the shit hits the fan, and it’s not just fear of
their own mortality. Sometimes it’s just
the awkwardness. Sometimes it’s not
wanting to be overbearing. Some people
are so afraid of not saying the “right” thing that they chose to say nothing at
all. I believe all those reasons are
true.
And I don’t give a shit about any of it.
Now that I’m almost done with this phase, now that I am
about to move toward the next steps of decisions and fears and side-effects and
medicines, I feel really prepared to understand the people who have no –showed on
me around this. And I also feel pretty
prepared to tell them all to fuck off.
I said as much to Dawn.
She gave me a knowing look, a look that said that she had heard it all
before. It wasn’t a judgmental or shitty
look, not a look of disdain or pity, just a look of familiarity. So I guess I’m not the first person to feel
abandoned by this process, and by the people who can’t stand up to it when they
don’t actually have to.
But I do have to.
I don’t get a choice. I got and get to choose my treatment, yes. I got and get to choose my team and whether
or not I follow their suggestions. But I
don’t get to choose to not stand up to this cancer and tell it to go fuck
itself against a wall. My momma didn’t
raise me to crouch in the dark corners and hide from the hard stuff – she taught
me to take off my rings and make it choke on its teeth.
So that’s what I’m doing.
But I’m doing it with the help of far fewer people than I would have
assumed. And that sucks. It just sucks. And I don’t know how to forgive those
people. I understand them, but I don’t
know how to forgive them. And I don’t
even know if I want to. It might be a
phase that will pass – Dawn’s look suggested as much. But for now?
No way.
I have 3 treatments left.
Barb will take good care of me tomorrow, I know. Then Carle will be back Monday and
Tuesday.
And then… who the hell knows
what happens then. But I’ve finished 27
of 30.
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